WORDY 'N' SMITTEN

A Best Friend from Creation

A Best Friend from Creation, written by S. A. Healey
To this day, I have a hard time wrapping my head around the fact that this incredible person came from inside of me, a tiny body attached to a cherub’s face, gifted with the eyes of a much older soul. She first connected with my cradled arms, a human burrito with a single clenched fist that managed to escape its bunting, sticking defiantly up in the air in a salute to freedom. All she needed was a torch and she could have passed for a miniature Statue of Liberty.

Her high-pitched, newborn battle cries were impressive, and I would have thought her distressed if not for her eyes, which told a different story. They locked with mine, peering through them like windows, finding the parts of me I had long kept tucked away. It didn’t seem possible that this brand new creation could see straight to the chasm where my dreams lay in waiting, but I felt it with each expansion of my heart. Those almond-shaped eyes held a kind of wisdom that would take me years to understand. This was not just any child. This was Elizabeth, my treasure beyond measure — a soulmate forever connected by blood and veins.

Hours after her birth, my husband and I were dumbfounded by a visit from Elizabeth’s pediatrician, who spoke to us about things like Down syndrome, Trisomy 21, mental retardation and delayed development. We were told she had a greater chance of developing leukemia and Alzheimer’s disease than the general population. We were advised to enroll her in early intervention, yet prepare ourselves for the possibility that she may never speak, read, write or attend a regular school. Descriptive phrases were tossed into the air, like low-toned, flat-nosed, short-necked, and protrusive-tongued. The rational part of me knew the doctor was merely doing his job, while the irrational part imagined screaming profanities in his face while enlightening him on the concept of bedside manner. But as my attention shifted from his moving lips to the bassinette-on-wheels stationed next to my bed, I couldn’t recognize this child he spoke of. Instead of an assemblage of defects, I saw a gift, a daughter, a product of love’s procreation — eyes full of wonder and a chest gloriously rising and falling with each tiny breath. I saw my own quiet countenance and my husband’s zest for life. I saw Heaven. I saw God.

I saw my best friend.

Elizabeth is fifteen now, a freshman in high school. She sings in the chorus. She swims. She bowls. She lives and breathes music and is somewhat obsessed with One Direction and Miley Cyrus. In many ways, she’s just like any other typical teen. And in other ways, she’s not.

Down syndrome is a label that will follow her around her entire life. And because it takes her longer to achieve certain milestones than most, she is considered a “special child” by society’s standards. Well, I have to agree. She certainly is special. And I’ll tell you why.

When she looks, she sees. When she listens, she hears, ingesting the words and much of what goes unspoken.

She is my kindred spirit.

Here is a person who never judges, admonishes, or has a negative word to say about anyone. She tells me, “I love you, Mom” without fail, every single day. She understands me in a way that most people twice her age can’t, while at the same time embracing my entirety, even the parts that aren’t always pretty. I’ve never known anyone so completely attuned to human emotion, and whenever I’m having a crappy day, she puts her arm around me and asks, “Are you okay?” When I cry, she cries too, internalizing my pain as if she’d rather take it on herself so I no longer have to.

Through the years, we’ve carved out our own special nook amid the hustle and bustle that monopolizes such a large chunk of life in these modern times. We take it slow. We observe nature. We listen to songs on repeat until we know the lyrics by heart. We cuddle. We hold hands. We share. We smile. We joke and laugh.

We love.

Elizabeth projects love in its purest form, and it rolls off her in waves until I’m soaked to the soul. When I experience this love, I cannot help but want to be a better person…someone more selfless, more patient. She fills me with confidence. She brings me clarity. She is my biggest cheerleader. Through her, I have learned that each day is a gift to be unwrapped with Christmas morning excitement — that everything I ever needed was always in front of me, right at my fingertips.

I have learned to see through her eyes, to witness the beauty in ordinary things — things many of us take for granted, like cotton candy clouds and the smell of rain-fresh pavement.

Elizabeth may never attend Harvard or become a lawyer or earn a million dollars in her lifetime. But she is the epitome of what it means to be a good person. She is the best daughter a mother could ever ask for. She is my treasure beyond measure, designed with the exquisite almond eyes of a wise old soul.

She is my best friend.

Oh, and did I mention that she is an amazing big sister to my other bestie? Well, that’s a story for another day. 🙂

Copyright © S. A. Healey

At My Fingertips (a poem)

At My Fingertips, a poem written by S. A. Healey
It happened
Against the nocturnal blush
Of the whispering sky
My eyes lost
In its infinite blackness
Until I suddenly found myself
Up in those stars
And again in the shadows
That melded and danced
Beneath the brooding trees
And I caught an epiphany
On the wind
As it thickened my hair
Leaving its debris
Until it was all I could feel
And I knew I’d never formulate
The proper words
To translate such a moment
But I longed to write them anyway
And I continued to gaze above me
Absorbing the vastness of the universe
Mind bent by the notion
That I was something
So very small
Inside of something larger than life
Yet comforted by that special nook
Carved out for me
Amid the diamond flickers
Pirouetting like a billion souls in flight
And though I’d forever yearn
And though I’d forever dream
For things I couldn’t yet reach
Still I’d live this life
And still I’d feel this life
As it hummed along my skin
And rattled my bones
Like claps of thunder
Awakened and unencumbered
By an intense clarity
That everything I ever wanted
Or needed
Was always there
Right at my fingertips

Copyright © S. A. Healey

See. Hear. Feel. (a poem)

See. Hear. Feel. A poem written by S. A. Healey and her daughter, Elizabeth
I see

I hear

I feel

Am I the only one who can?

Why do you rush when there’s nothing but time?

Why don’t you dance when the music comes on?

Is it because people are watching?

Show them how amazing you are!

Why wear beige and seep into walls?

Why not wear red — be a standout instead?

Be proud of who you are!

Don’t just walk

Look around

Catch the brilliance in the ground

Do you know what I mean?

Silver flecks in the pavement shine like diamonds when the sun hits them just right

There is so much beauty in ordinary things

Do you see it?

I’d rather look ahead than down at my phone

Look at me

What do you see?

Aren’t I spectacular?

Look at you

You’re terrific too

Don’t you see it?

Do you hear the ocean when it speaks to you?

It’s talking in waves

Do you listen?

“Shhhh,” it whispers

I know what it means

Do you?

I’ll tell you a secret

We make too much noise

We love to hear ourselves talk

Don’t we?

Our voices are shrill

We want to be heard

But do we hear?

We should listen more

The ocean is smart

Why else would it be so big?

When I swim I am drenched with hugs

That’s because the Earth is special and so is God

And He loves me

God made the ocean and that’s why it holds me

It holds you too

But do you feel it?

Do you taste the salty kisses?

That’s how the ocean says hello

Do you say good morning to your family?

Or do you grunt instead?

Do you tell them you love them?

If you don’t, you should

People are grumpy a lot it seems

Maybe it’s because they’re tired all the time

People need to rest more

And take vacations

I love Disney World

You can get your picture taken with all the princesses

I like to pretend I’m a princess

Elsa from Frozen is my favorite

When I feel sad I say to myself, “I am a princess”

Or I pretend I’m Bethany Hamilton, my hero

And that makes everything better

When you feel sad, you should try it

And music

Never forget the music

Listen to your favorite song on repeat until you drive your parents crazy

And dance until your feet hurt

But the most important thing…

Smile

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October is Down Syndrome Awareness Month. This poem was inspired by and written with the assistance of my daughter, Elizabeth, who happens to have an extra chromosome. Her family and friends celebrate her beautiful accomplishments and zest for life every single day.